About WM

The better informed you are, the better your chances for successfully managing your WM and maintaining a good quality of life.

This section provides links to IWMF material providing a wealth of information about WM. Such information gives knowledge.

CLICK on the Topic LINK to view the selected IWMF material

 

Links to the IWMF information
Newly diagnosed

http://www.iwmf.com/about-wm/newly-diagnosed

We understand that this is a very difficult time for you. Not only are you, your family and your friends experiencing the gamut of different emotions that come with a cancer diagnosis, but there is so much new information to learn. Where do you begin? The IWMF is here to help.

Initially, you will need to learn some basics about Waldenström’s macroglobulinemia (WM), sometimes referred to as a lymphoplasmacytic lymphoma (LPL). It will also be helpful for you to understand the medical tests and their results which are performed to help diagnose and monitor your disease. The IWMF website and our publications are up to date, patient-centered resources. 

CLICK on the  LINK to view the following IWMF videos http://www.iwmf.com/infopak-video

IWMF Recommended Videos for those Who Are Newly Diagnosed with Waldenström’s macroglobulinemia
To access these videos go to www.iwmf.com/infopak-video
The Garden Talk Published on June 8, 2015
Dr. Morie Gertz of Mayo Clinic discusses Waldenström’s macroglobulinemia (WM) in an easy –to- understand format at the 2015 International Waldenstrom’s Macroglobulinemia Foundation Ed Forum. This is a great introductory video to learn about WM using the “the garden” as a metaphor for the body and how cells grow and how to get rid of the “weeds.”
I’ve Been Diagnosed with WM-Now What?
Published on June 8, 2015
Dr. Joseph Mikhael of Mayo Clinic discusses the basics of WM (with slightly more complexity than The Garden Talk) and how it is distinguished from multiple myeloma and lymphoma. He goes on to discuss the importance of an accurate diagnosis and highlights the critical features that establish the need to treat WM. Finally he outlines the overall approach to therapy for WM.
WM: An Exciting Upbeat Story Published on Jul 21, 2016
Dr. Morton Coleman of Weill Cornell Medical College discusses the progress made in understanding and treating Waldenström’s macroglobulinemia at the 2016 International Waldenstrom’s Macroglobulinemia Foundation Ed Forum. This is great introductory video on WM and how “the glass is half full” for patients with WM.
Doctor, How Long Am I Going to Live?
Dr. Jeffrey Matous of the Colorado Blood Cancer Institute discusses the current “positives” for survival with the WM diagnosis in a very powerful video.

Causes, risk factors and prognosis http://www.iwmf.com/about-wm/causes-risk-factors-and-prognosis

Causes, Risk Factors, and Prognosis are usually among the most asked about items from a patient or caregiver.  While there is no definitive answer yet for either of these, we will try to outline the current thinking in this regard

Diagnosis & disease monitoring http://www.iwmf.com/about-wm/diagnosis-disease-monitoring
Interacting with your medical team http://www.iwmf.com/about-wm/diagnosis-and-disease-monitoring/interacting-your-medical-team
Treatment http://www.iwmf.com/about-wm/treatment
LIVING WITH WM http://www.iwmf.com/about-wm/living-wm
FUTURE DIRECTIONS http://www.iwmf.com/about-wm/future-directions
FREQUENTLY ASKED QUESTIONS http://www.iwmf.com/about-wm/faq
GLOSSARY OF TERMS http://www.iwmf.com/about-wm/glossary-terms
You may order an IWMF Patient Info Pak and you can also download several of IWMF publications