International Waldenstrom’s Macroglobulinemia’s Foundation (IWMF)
WMozzies was formed as a joint initiative by Ben Rude IWMF President 2000-05 and IWMF Australian member Gareth Evans.
WMozzies is an Affiliate member of IWMF. IWMF is based in the USA and was formed in 1998, but it beginnings started in 1994 with a 21 member email group.
The History of the IWMF is detailed at: http://www.iwmf.com/about-us/our-history
The IWMF currently has a worldwide membership of over 7,000, with Support Groups and affiliate organisations in virtually every continent.
IWMF Support Services
Today the IWMF:
- Provides support to patients and their caregivers
- Enables patients to communicate with one another
- Sponsors WM educational forums featuring
prominent physicians and researchers
- Publishes booklets on WM and its treatment
- Supports research aimed at ultimately finding a cure for WM
- Since 1999, the IWMF has invested over $8.1 million dollars in research on our disease.
Anyone joining WMozzies is also invited to join the IWMF. Go to: http://www.iwmf.com/how-you-can-help/join-iwmf
To access the full list of services: Go to: http://www.iwmf.com/get-support
The services highlighted above can be accessed from the links within each one, or through the IWMF services link below.
- The IWMF Torch newsletter, produced 4 times a year, which you can receive in PDF format.
- An Educational Forum, held in a different US city each year.
To see presentations from the most recent Educational Forum
and videos of presentations from it and previous Ed Forums,click here.
- The IWMF-Talk discussion forum, this is an email talk list, where all matters regarding WM are discussed amongst patients & caregivers
- Various publications & booklets with much useful information about WM that can be downloaded directly from the website.
IWMF volunteers, volunteers from the IWMF Affiliates, and WM researchers have developed publications including Booklets, Treatment Guides, and Facts Sheets to provide the newly diagnosed and veteran patients, as well as their caregivers, with up-to-date information about Waldenström’s Macroglobulinemia and how to treat it.
The IWMF does not warranty the content of these publications. They are made available to you as information, and we encourage you to discuss what may be appropriate to you with your haematologist.
To download publication please click on the relevant LINK.
Basic Immunology http://www.iwmf.com/BasicImmunology
By Guy Sherwood, M.D. (English version updated 2014; other versions updated 2007.)
Glossary of Medical Terms http://www.iwmf.com/system/files/WM_Glossary.pdf
Written & compiled by Guy Sherwood, M.D., Bret Blakeslee, Sue Herms, & Peter DeNardis, 2012.
Clinical Practice Guide for the Treatment of WM (Australia) http://www.iwmf.com/system/files/WM_guidelines_FINAL.%20Australia.pdf
By Dipti Talaulikar, M.D., Constantine Tam, M.D., et al, 2016
This booklet is a consensus established by the Australian Medical Scientific Advisory Group, which consists of a panel of haematologists across Australia, and it is provided by the IWMF Affiliate (WMozzies) in Australia.
Guide to WM and LPL http://www.iwmf.com/system/files/WMUK_LPL_WM_Final_V2.pdf
By Shirley D’Sa, M.D., 2014.
Medical Tests http://www.iwmf.com/system/files/MedicalTests.pdf
By Guy Sherwood, M.D., 2007. Revised by Sue Herms and Linda Nelson, 2016.
A reference booklet of medical terms and tests, this revision places particular emphasis on expanding the explanation of the Complete Blood Count and on Immunoglobulins. Tests for beta-2 microglobulin and light chains have been added, as has genetics testing.
Waldenstrom’s Macroglobulinemia: Questions and Answers http://www.iwmf.com/system/files/Q%26A2017-English.pdf
Revised 2010/2014 Guy Sherwood and Sue Herms
Designed to address common questions about Waldenstrom’s macroglobulinemia, this booklet, including a full glossary of terms, is a detailed companion to the IWMF webpage, Frequently Asked Questions (FAQ).
Treatment Options Guides
By Guy Sherwood, M.D., 2013.